Day 1 - in hell

Wednesday. The first morning at the psych unit. They wake you up at 7.30 a.m., no matter if you have slept during the night or not. They want you to sleep and gather your strength but at the same time they want you to get routines. Well, getting up that early has never been and will never be my routine. I was a wreck. I talked to my husband on the phone who told me that he wouln't come and visit me that day. He needed some distance. That was quite a shock for me because he has never missed a day to visit me when I was at the hospital before. I was shattered. You know, him having his freak out and screaming and shouting, threatening to leave me kind of drove me over the edge. I get that my illness has a negative effect on him and that it's dragging him down. I get that he was afraid. But that doesn't give him the right to push me down mentally, to make it worse. And I had by then realized that he is the only thing in the world I'm still fighting for. The last few years I haven't been fighting for myself, I have been fighting for not making him upset. I love him and I don't want him to suffer. When he told me that he couldn't take it anymore, I just snapped. I felt like it would be the best solution to disappear. I felt like that I was a burden and that it would be best for everyone involved if I just died. It was just the final drop to my misery. So that he didn't want to come and visit me was really difficult for me. I understood that he needed some time for himself but I needed support as well. He has had a fucked-up life and still hasn't dealt with a lot of things so I understand that he has difficulties dealing with the present because of that. I just had hoped that he would understand that I needed support. Or maybe it was egoistic of me to think that I was suffering the most in the whole situtation.

They didn't have my Vitamin D-pills which I thought was a tad unprofessional. It's no big deal if you skip them one day but come on, I'm at a hospital, you should have medications. I ate half a sandwich which I threw up because I was so anxious. I spent the morning in bed, watching Dexter. I took a short nap. Then I had a meeting with the chief psychiatrist, a nurse and an intern psychiatrist. I had had met him before, J, the chief. We just never got along because he didn't get me. He is not Swedish so in the beginning I thought it was the language. He has a bad accent but his grammar is correct so I don't think it's the language. He is known to be tough and mean. I know of people who actually officially complained about him. I know of people who refuse to be in the same unit as him. But I had no choice, he is the chief of the unit and he was the one treating me. There is one thing that I like about him, he is straight forward. And he asks things, he discusses things, he is a bit like a therapist in that. His answers are never empathetic though. He understood that I was in a bad state but he decided that I should be send home on Friday. I told him that I'm not sure if I'll be alright until then but he had already decided that that was the treatment-plan: let me stay for two more nights and then send me home. I asked him about the restless legs and spasms but he said he didn't want to give me anything for that and he even doubted it was the Propavan that had caused it. He told me to try out that blood pressure med I had gotten prescribed instead. Then he asked why I had gained so much weight since we last saw each other. I told him that I have been diagnosed with hypothyrodism and he answered that it can't be only that. Well, thank you asshole. And then he told me that he wants to tell me something, kind of off the record. He told me that he had met me a few times now and that he doesn't get anything from me, he doesn't feel anything from me. He said that I don't have a personality!!! Who says something like that to a person that is suicidal and already hates herself?!? I didn't even know what to reply. I was stunned. So we shook hands and I went back to my bed.

I couldn't get his words out of my head. They haunted me. If I don't have a personality, I can't be human, I must be like an empty shell. R, my absolute favourite nurse, had heard that I was at the other unit and came over for a minute to give me a hug. It felt really good to see a friendly face. The one nurse that was responsible for me is actually someone I know, she is a friend of some friends of mine. We had never talked but we had been to the same clubs and parties. But as I thought the law prevents her from telling anyone about me, I didn't really care if she was my nurse or not. 

Then I had another major breakdown. I tried to strangle myself with the cable for my netbook and lost consciousness for a second. Another patient found me on my bed but I told her not to tell anyone. I was afraid I was going to be restrained. So I just sat on the bed, crying, shaking, having lots of anxiety. I went to the bathroom and I found a needle on the floor there. One of the women that I shared the room with was a muslim and I think the needle came from her head-cloth, I saw her attach it to another cloth underneath with needles. So I self-harmed in the bathroom. I went back to bed and on the way there my legs gave in. My legs were just so weak from the spasms and the restlessness. I crawled back to bed. And cried. I could have gone out and asked for help. The thing is that I didn't want to bother anyone. I didn't know anyone who was working. I felt like I had no right anyway, I felt like I wasn't human and just didn't have the same rights as others. Eventually I asked one of the women who I shared the room with to fetch someone. A nurse came, we went outside to some sofa to talk. She was really terrible at her job. I was crying, sobbing, telling her about how I wanted to die and how I just couldn't take it anymore. And what did she say? "Yeah, I can't solve your problems". What kind of an answer is that? So I asked for a sedative because I just wanted it all to go away, I wanted my head to shut the heck up. And guess what, they had forgotten to sign off my pills again so they couldn't give me anything! WHAT THE FUCK? How unprofessional can they be? They had to contact an on call psychiatrist again. In the meantime I was freaking out. I talked to one of the other patients for a minute or so and decided to just leave. I put my shoes and my jacket on, my cellphone and my cigarettes in my pockets and wanted to just leave. I had a 5 now, I knew that J had changed that. So I had the right to leave. But they didn't let me. This one male nurse refused to let me out. He said that he can't trust me because of the state I am in. I honestly didn't know what my plan was anyway. Just to get out of there? And then what? Kill myself? Go home? I really hadn't thought that through.

So I ran back to my room and hid under my blanket. The other patient said "I told you they wouldn't let you out!" and I was just crying. After an hour I finally got a sedative. And all of the sudden I got a lot of attention. I wasn't alone for the next several hours for a second, there was always a nurse checking up on me, trying to talk to me. I got forced to eat some dinner, I had some bites and threw it up again. I was such a wreck. But eventually I calmed down. The sedative helped a bit. One of the women in our room got discharged so we were only three women that night. The muslim woman slept all the time. I talked a lot with the other woman, a Finnish woman who was constantly knitting clothes for her grandchildren. She told me that I should take care of myself in the first place and not let my husband oppress me. He can't blame his behaviour on me. We also talked about meds and other things. You know, when you are at a psych unit, all people talk about are meds, suicide, good and bad psychiatrists and so on. Weirdly enough, she had met all the doctors I had met and had the same opinions about them as I have.

I could fall asleep that night but I woke up after two hours again, took another sedative, cried some more. My legs were driving me crazy and I could barely make it to the smoker's cubicle. Another terrible night. That was my first day at the psych unit.

How and why I ended up at the hospital ...

So about two weeks ago I really hit rock bottom. I had been in a depressive period for some time. I had had difficulties with my daily routines, with eating, with my sleep, with my studies, with getting out of bed at all. I had been aware of that, really aware. But I just couldn't do anything about it. I tried to fight on with simple things, trying to do positive things. But life just happened and a lot of things stressed me out at the same time. I maybe could have handled the depression, I maybe could have handled the problems. But I couldn't handle both. I had had some meetings with my therapist, even had a meeting with him and a psychiatrist. I had called the ER twice. I didn't want to end up in the hospital. But at the same time I just really wanted to die. The suicide thoughts were in my head all the time. I was in a very desperate mood. I planned, I tried to ignore the thoughts, I wrote goodbye-notes, I burned them. It was all just a huge mess. And I self-harmed. I'm not a self-harmer, it has happened four or five times that I cut myself. All the times before I could actually blame meds, they made me worse and drove me to self-harm. But this time it was ME, I had so much self-hatred inside of me. I hated myself for not being brave enough to kill myself. I hated myself for dragging everyone around me down. I was disgusted by myself.

Tuesday. I was in a bad state because of four reasons: 1. The depression had stolen my ability to sleep. I hadn't eaten in two days. I was sad, so sad. I was anxious and restless. 2. My legs were still driving me crazy, the restlessness, the spasms. I couldn't take it anymore. I coud barely walk. I felt handicapped and so over with this feeling. 3. I had disappointed my mum because I had cancelled on her and my sister for Christmas. They were supposed to come and visit us (I live in Sweden, they live in Germany) but I felt like I was in such a bad state, I couldn't have them at my home for a week. At that point I didn't actually care about Christmas. I wasn't even sure I was going to live until Christmas. 4. The day before had been a horrible horrible day. My husband had a total freak out because of how I was doing. He basically screamed at me for hours. He threatened me with kicking me out, with sending me back to Germany, with leaving me, with getting me sectioned. And he made it very clear that he was doing badly because of how I let myself go. He just couldn't take it anymore. I hid in the bathroom for a time, locked myself in. I can't handle conflicts, I get really scared. And all that screaming and threatening scared the hell out of me. I had a really bad breakdown in the evening. I was close to killing myself. I had already kissed the cats goodbye. I wanted to go down to the lake and drown myself. I was so desperate. But I didn't do it, I instead self-harmed the worst I have ever self-harmed. Now I hope that the scars will go away, I don't want to be scarred for life! My husband called the ER and they booked in an appointment with the same ER-psychiatrist I had met before, and my therapist, the next day.

Tuesday morning I was a mess. I couldn't get out of bed because of the spasms. I was crying because I had so much anxiety. And at the same time I was really apathetic. I just didn't care anymore. The appointment was weird. I wasn't really there, you know, my mind was blurred, I was absent in my mind. I remember my therapist saying that he wants to refer me to another clinic for MBT-therapy. And all I thought was: great, he has given up on me too, he must hate me, I must be such an annoyance, I really should just disappear. The psychiatrist and my therapist asked me lots of questions but I'm not sure if I even was able to form a sentence. They realized that I had self-harmed and as I looked like shit, they probably understood that I was a mess. So the doctor gave me an ultimatum: either I promise that I won't kill myself until the end of this year or I'll voluntarily admit myself to the hospital. I tried to get out of it as I didn't like any of the options but he said that's it, no other options. So I had to choose the hospital. I couldn't promise anything. I somehow believe that I saved my life in that moment. It wasn't me who had booked the appointment, my husband had, he had driven me there, without him I would be dead. But I could have lied and promised things. But I didn't, I chose the hospital. My "weird" therapist told me that he didn't want to meet me while I was admitted although that's what everyone usually suggests, that you meet your therapist for support while being at the hospital. I really don't know why he is treating me like this?!? It almost feels like he is trying to punish me for being a difficult patient. I so need to discuss this with him, maybe I should switch therapists.

I had to wait in the waitingroom for almost an hour (under the supervision of the receptionist) while the psychiatrist got in touch with the hospital and tried to find a bed for me. When he finally came to meet me again, he told me that I was going to be at a unit I had never been at. I was in tears. I have social anxiety, I can't deal with new places and people well. The only person I knew was the chief of the unit because he used to work at the other unit I usually end up at. And we don't get along, he just never got me So I didn't want to go. But really, I had no choice. I could have lived with the usual unit, where my favourite nurse, R, works. He had always been able to pull me out of the shit. He is basically the best nurse you could meet. I love that man! But nope, I was now going to a unit I had never been at, with staff I didn't know, and no R. I was allowed to go home and pack a bag. And about two hours later I rang the bell of the unit.

The unit is locked which means that there are two double doors which are locked. And only the nurses have keys. There are five different numbers you can get: 1 - not allowed to go out and constant supervision 2 - not allowed to go out and regular supervision  3 - not allowed to go out on your own, only with staff  4 - only allowed to go out with staff or family 5 - allowed to go out but you have to tell them where you are going and when you will be back. 

There is a smoker's cubicle, a small kitchen, a dining room, a TV-room, a nurse's office, a nurse's kitchen and room, lots of chairs and sofas, four conversation-rooms, an examination-room. And the patients' rooms. There are no single rooms (well, unless you need constant supervision, then you sometimes have a room for yourself). There are two four beds rooms and the rest are two beds rooms. Each room has a bathroom. It's a mixed unit, men and women, 18+. It's a unit for depression, anxiety, personality disorders and suicidal patients. 

A nurse picked me and my husband up at the door and I was placed in a four beds room. Luckily I had one of the beds behind the blinds. All other three beds had patients in them. I talked to the nurse who told me that the psychiatrist from the clinic had forgotten to sign off my meds or write something at all in my journal. So I had to wait and meet an on call psychiatrist so I could get my meds and get assessed again. What the heck?!? I needed a sedative so bad. I talked a bit to one nurse and my husband stayed until 8 p.m.. They tried to convince me to eat something but I didn't want to. Four (!!!!) hours later I finally met that psychiatrist and I had to tell my whole story because he hadn't had time to read my journal. He gave me a physical (he couldn't find me pulse first, and I had high blood-pressure due to my anxiety) and signed me in properly. I got a 3 and all my meds got listed and allowed. I watched an episode of Dexter (I had my netbook with me and they have wifi) and at around 1 a.m I took my Zoplicone and tried to sleep. That didn't work at all. At 2 a.m I had a bad breakdown, talked to a nurse for an hour, cried, cried, cried, got desperate, wanted to leave, cried some more, had bad spasms and restless legs, smoked at least 5 cigarettes, cried some more, talked some more, tried to sleep again, had a hot chocolate, cried again, telling them to just leave me alone and let me die. In all of this I tried to not disturb the other patients. I was sitting on a chair, close to the outter doors, as far away from the patients' rooms as possible. They convinced me to take a sedative and around  5 a.m. I finally fell asleep. So those were my first few hours at the psych unit.

Looney bin - how the system works in Sweden

Before I tell you about what actually happenened, how I ended up in hospital and how my time there was, let me explain the Swedish system a bit. There are no mental hospitals in Sweden, unless you are talking about forensic psychiatry. There are facilities for mentally ill criminals who are too ill to be in prison. In some of these hospitals they also keep severe cases of the mentally ill, self-harmers, people who have tried to kill themselves too many times. It's kind of the final destination for the people the system has given up on. It's actually quite a disgrace that they keep self-harming women in the same facilities as schizophrenic murderers. There have been a lot of debates about that in Sweden this year because these young women are treated badly and as it all happens behind closed doors, no one really knows what's going on. So that's the only kind of "proper" mental hospitals there are in Sweden.

They closed down all asylums in the 1990s and let everyone who had been in there out. Yes, they released all mental patients at once from all mental hospitals. Crazy, eh? So since then there is polyclinic and inpatient care. At the polyclinic you meet therapists, doctors and nurses and it's basically built up like a GP's office. Well, apart from all the security, they have lots of codes and locked doors there. The receptionists are bhind glass. I guess some mental patients can get quite agressive so it's good to be precautionary. So that's where you get therapy and have meetings with psychiatrists. They are often huge places, where I go they have around 30 therapists and 10 psychiatrists. They have an emergency number, an emergency pschiatrist and an emergency team to come and visit you. They are only avaiable until 10 p.m.. Mind you, not all polyclinics have that. You go there voluntarily but I also know of people who are forced to attend therapy because they have antisocial personality disorder.

The contact you have with the professionals isn't really personal. I get therapy 45 minutes a week and meet a psychiatrist maybe once every six months. You don't get the number to your psychiatrist and you are only allowed to call your therapist when you are in crisis. They have many patients so they really don't have the time to put a lot of energy into one case. They have time-guidelines to follow, it's all quite capitalistic. Like, CBT is only 12 weeks, then you are supposed to be "cured". Another thing is that most of these polyclinics are owned by private companies now, not by the state. So it's really all about money and efficiency. That's something we have the right-wing government to thank for.

Then there is inpatient care. As there aren't any mental hospitals, the psych units are in normal hospitals. How many units there are is really based upon how big the hospital is and where in the country you are living. The hospital I've been at is the biggest one in the country and it's in Stockholm. So they have 9 units (I think). There is one for intensive care, two for general care, two for psychotic patients and two for affective patients (bipolar, manic). Each unit holds around 25 patients (I think officially there is only place for 20 but they try to "make place" by putting two beds into a one-bed room). The intense care is mostly for violent patients. There is one hospital in Stockholm who has a psychiatric emergency room which is huge and they are open 24/7. You always run into high addicts there which I find quite uncomfortable.

So how do you end up in inpatient care? The most common reason is that you have been sent there by your polyclinic. You will have to have met a psychiatrist who assessed you. They will fix a place for you if they feel there is a  need for that. Then there is the ambulance but they always take you to the huge psych ER which means many hours of waiting with addicts and psychotic patients. And then there is the possibility to call a special crisis number. They will tell you to come in and get assessed by a psychiatrist. I have done that a few times. Well, I didn't call, my man did and they told me to come in. That's how I got admitted the first time ever.

And there's voluntary and involuntary treatment. Either you seek help or they section you. There are quite strong laws when it comes to sectioning but if you had been sectioned once, it is easier to section you again. Bascially, you have to have serious mental illness, you need to be a danger to yourself or others and you need to refuse to get admitted. I have always been at the inpatient care voluntarily. But it's not easy to get in in the first place. A depression won't do it. A panic attack won't do. You need to have hit rock bottom, you need to be a milimeter from suicide. Oh, and after a suicide attempt you always get sectioned.

So that's what the system looks like in Sweden. I just thought I'd explain all that before I'll tell the story of my last visit to the psych unit.

Back from the hospital ...

I ended up at the hospital. I had been fighting so hard for not getting there because I had felt like that there is no help there for me. Honestly, I think I somehow have post-traumatic stress from the last times I had been there. And it felt like a huge failure, that I couldn't take care of myself anymore, that I caused trouble, that my life had gotten out of hand that much again. I have been at the psychiatric unit (closed ward) seven times so far. And I can tell you, it's no fun. Someone on Twitter actually asked me to describe the closed ward, what it is like there, what the days are like. I will write some posts about that later today. Maybe they can help some people to get over the fear of ending up there, and maybe it will teach some people that you can't always trust professionals. And honesty, I think my stories will teach about the importance of honesty if you are in a position that involves life and death situations.

I got in the hospital on Tusday evening and I was "released" yesterday morning. I was there voluntarily.And I hated every minute of it. But I must say that the few days there probably saved my life. I can't say that I'm doing much better now, I never do when coming home from the hospital. I'm kind of still in my hospital-mode, I am trying to work through the experiences I have had there. I'm also relieved because I don't have people around me all the time.

The whole crisis has destroyed quite a lot of things for me. My relationship with my husband has a huge crack right now. My mum and I barely speak. I'm terribly behind with my studies. And have I gotten help? I don't think I'm critically suicidal at the moment. But my mindset is still the same. I still don't sleep enough. I don't eat properly (I forget ...). And I'm now even quite unsure when it comes to the psych-help I'm getting. 

But it's Christmas now and I guess I should get into a Christmas-mood. In Sweden we celebrate Christmas Eve big, that's when you eat the big meals and get the gifts. That's today. I hate Christmas. I have always hated Christmas. In my family Christmas meant being supertensed. My dad always freaked out eventually and you didn't want to be the person in his way at that moment. This year I'll just be at home with my man. We have a few gifts to exchange and we have bought some yummy food. I'll try to be on my "best behaviour" today. That means: no crying, no showing of anxiety, no whining and no desperate attempts to end my life or hurt myself. I want my man to feel safe and happy. I want him to enjoy this day. So I'll take a step back and do whatever I can today. I have a huge fear of getting send back to the hospital. This is what has always happened, I come home from the hospital and a few days later I am back there. I think my strong aversion towards being locked up makes me take hasty decisions and I get home too early. Not this time, this time I'll not get there again. No no no. 

Anyway, Merry Christmas everyone! And if you don't celebrate Christmas, have a few awesome days off from work/school/every day life. Happy Holidays!

I've lost control again

Yeah, it has taken me yet another month to update my blog. I think it's a good thing because I would have only caused confusion if I had tried to describe my state of my mind. I actually have trouble grasping my state of mind right now. I don't know where I am in my life, where I am in my head, whether I'm dead or alive.

The last few weeks have been a path into total darkness. I don't know why it hit me, I don't know what exactly has dragged me down. Is there always a reason? People tend to ask what has happened if you tell them that you are feeling bad. But there isn't always a cause- and effect-relationship that is obvious. There have been things that have immensly influenced me during the last few months and I guess they contributed to me slowly giving up on life. I always know that I'm close to the abyss when I don't want to fight anymore, when there is no will. I have difficulties when it comes to changes anyway. But when I'm really down, I don't want to change anything, the only change I want is to make it stop. I have lost my will to fight and my will to live. The last few months I have been fighting like crazy but how do you keep on fighting against a shadow that is slowly dragging you into hell? How do you see the light? I don't know.

The restless legs and spasms hadn't been getting any better so I eventually called the emergency number of the psych-center I'm going to because my mental health was in a really bad state because of that stupid Propavan-withdrawal. I had to wait for a week for an appointment with an emergency-psychiatrist who works at the center. I wish he was my regular psychiatrist because he was the kind of professionel who had definitely chosen the right job. He took his time for me, we discussed everything for an hour. He asked tons of questions. He took me seriously (!) and prescribed some meds for the akathasia (he thinks that's what I have). He also told me to stop taking the Propavan altogether because it was obviously no good for me and that my brain wouldn't be able to recover if I was giving it more of the med. So I stopped taking the Propavan and I haven't taken it for more than two weeks now.

Then I got a bad cold. I was too scared to try out the med I had been prescribed because I had asthma and it is known to give asthma. I actually still haven't tried it out although my legs often drive me insane and I can't walk for a long time because my legs are really weak. Not taking the Propavan led to no sleep. The Zoplicone (other sleeping med I'm taking) stopped working on me. So I've had many many sleepless nights. Most nights I don't get more than three hours of sleep. Weirdly enough I'm not too tired in my body, but it is really making my head spin.

In all that I suddenly got really sad and desperate. It could be the restless legs and the lack of sleep. I also don't eat properly because the thyroid-hormone I'm taking is making me feel sick so my appetite is gone. I have lost quite a lot of weight actually. It's a lot of things contributing to this. I'm also stressed out by my studies, my boyfriend is in a bad depression right now, our car broke down. Just a lot of things happening. So I have given up the fight. I have constant anxiety. I'm crying a lot. I barely get out of bed. I have lost interest in everything. Like, my sister and mum are coming to visit us for a week on Christmas and I should be planning things. But I don't care.

So, as you might have guessed, this all led to me being really suicidal. Now, I haven't done a lot of suicide attempts in my life. I have always somehow gotten help before it got that far. So I personally hope that the risk for me doing something drastic is small. I have been talking about this with my therapist for the last two weeks. He has called me a lot, to check up on me. And he has been trying to get me in touch with a psychiatrist. He has been mentioning getting put into hospital which I'm totally against. I hate being at the hospital!!! But he really felt like that he needed some back up by a doctor.

The last week has been crazy for me. I self-harmed! That's not like me. But last week, three times. My arms look terrible and they sting! I had written goodbye-letters, planning my suicide, all the things one really shouldn't do. I triggered myself with a lot of things, reading up on stuff on the net. On Friday night I had to call the ER because I was totally out of my mind. It was 4 a.m., I hadn't been sleeping and I had spent two hours cleaning and brushing my shoes. If you take Zoplicone and you don't fall asleep on it, you can get really weird in your head. I got the worst help ever: "Take a sedative. Good luck. Bye!" Huh? 

Today I had an appointment with my therapist and a psychiatrist, the same one I have seen just three weeks ago. Before the meeting I had been really scared that they would admit me to the hospital. I was convinced that that was going to happen. I even had a bag packed. But nope. This doc is just amazing. He first told me that he would never section me which made me feel so safe. We discussed what has been going on and well, he said that the most important thing right now is that I get sleep. So I'll have to take Atarax for a week or so before going to bed, together with the Zoplicone. I hate Atarax, it really makes me sleepy, never helped for my anxiety and I get a terrible hangover from it. But what to do? And then he told me that I'm the one in control, I'm the one to take decisions. I liked that. When it comes to psychiatric help, I often feel like I'm out of control, I am being played around with. I basically said I know that I'm in a really really bad state right now but that I don't think that the hospital is the right place for me. But I have also been honest and told him that I can't promise anything, that I can't say what I will and won't do. I also didn't want to promise to call or contact anyone. I hate to lie so I'm rather honest. But he was fine with it. He somehow trusts me. I don't know why. Why does he trust me when I don't even trust myself? Maybe he can see something I can't see?!? Really, I wish he was my regular psychiatrist.

I don't know how I'm doing. I'm scared. Scared of myself. I can't trust myself. The self-harming totally threw me off. This is not me. I've promised myself to take the Atarax and Zoplicone during the nights. Maybe that will make my head clearer. Because right now I really can't think straight. My mood and my thoughts are all over the place. But somehow I got a tiny bit of will back, a tiny bit of strength. I think it has a lot to do with Dr.E saying that I'm in control. I need to be in control. 

GAH!

I really don't want to complain about this anymore. But the restlessness in my legs and arms is driving me nuts. I'm somewhat in pain too because my all my muscles are tensed all the time. The spasms aren't getting any better either. What annoys me the most is that I have tried to get help for it and I have been refused. My (new) psychiatrist told me that she can't prescribe anything for physical issues, even if it's withdrawal-symptoms from meds I'm getting from her. My GP doesn't really take the problem seriously. Sure, she tested my blood for all sorts of things and found out that I have hypothyroidism and vitamin D-defiency. But that's not what's causing my restless legs or the spasms. I know it is Propavan-withdrawal. But she she didn't listen. She just told me that she was glad she didn't prescrible L-dopa to me. L-dopa is the most common med against restless legs in Sweden. It has tons of side-effects. But at this point I wouldn't care. Give me anything, give me fucking horseshit to chew on if it is known to help! So what are my options? Take a whole dosage of Propavan again and give up forever to ever get off the pill. Or get through it and hope for the best. At the moment I'm sticking with the second option. Logically and stastistically, it should get better after a while. When I went down from a whole pill to a 3/4-pill I got restless legs and spasms three weeks after that. It was really bad for two to three weeks and then it got a bit better. So I went down to half a pill about three weeks ago. So in about two to three weeks it might get better. That's what I need to focus on. If in one month from now it has gotten any better, I'll give up. I could talk to my GP again but really, I don't think she will listen. Restless legs is something old people have, she said. And she totally ignored my comments about the Propavan. Another thing I could do is take Oxazepam. It didn't help before and I don't think it would help much now. But it is muscle-relaxing and it could reduce the anxiety I'm getting from this. So maybe I should just turn to good old benzo. 

Despite the damn issues I'm struggling with, I have been a good girl during the last two days. On Thursday I finally applied for a new ID-card and passport. I have been avoiding this so much because of the photo that has to be taken. I hate getting my picture taken, it gives me lots of anxiety and my self-hate always reaches new levels when I see myself on a photo. And especially those small photos for ID-cards and passports tend to look hideous! So I went to the police station and got my photo taken. I just asked the woman if my eyes were open on the photo, she said yes, and I told her to take the photo. I didn't want to look at the photo properly because I knew it would break me. I paid the 750 SEK (fucking expensive!), let them scan my fingerprints and signed. So that's finally done. Now I'll have to wait for another week and I can fetch the ID-card and passport. After that I went to the library (well, we, my hubby was with me, I don't think I have left the apartment on my own for months) to return some books, then to the post office to fetch a package full of books, then to the pharmacy and then to the supermarket to buy lots of fruit. On the way back to the car my legs gave in! It was really crazy, I was so weak. It must have been panic plus the restless legs. I was all dizzy and weird and I thought I was going to faint. So my hubby had to help me back to the car. I'm so dam pathetic!

Yesterday morning someone had to come into our apartment to check the ventilation system. They do that every few years, the law says so. I hate having strange people in my apartment! And I hate when they tell you that they will come somewhere between 8 a.m. and 4 p.m.. This only builds up extra-anxiety. The doorbell rang at 8.30 a.m., a young guy. I had just gotten up and was stll in my PJs. Anxiety, shame, trying to explain myself why I'm not normal and already up and busy early in the morning. I finally got the ultrasound of my thyroid done. I had to go to a clinic some miles from where we live to get that done. It was terrible to be in the waitingroom for half an hour because my legs were driving me crazy, I was in panic because there were so many people around and I just didn't want to seem weird and move around my legs all the time. T E R R I B L E! I was close to dissociating. When they called my name I first didn't even get that they meant me. I changed my last name when I got married and I'm not used to that yet. So they scanned my thyroid and it looks fine. The doctor there was really nice but that didn't help me much. I was on my back and someone was pressing a scanner against my throat. I was in panic! Well, at least I don't have an enlarged thyroid. Then we went grocery shopping and even to a shopping center to check one of their home improvement stores because we need new curtains. And it happened again: I got all weak, my legs were like rubber, I could barely stand up on my own. I really think it must be a combination of the withdrawal and panic/anxiety. My legs must be weak from all the spasms and I can't just walk around for hours. 

Today I have been super-anxious because of the withdrawal. But I'm trying to ignore all the bad stuff. I'm trying to keep busy. I have gotten a reply from my professsor, he has read my paper and he gave me an A. So yay, first paper/exam passed. I'm satisfied with myself. Now I hope I have passed the Russian-exam as well. Today I have worked on a paper that has to be in a few days and I have learned Russian vocabularies by heart. Trying to keep busy. Trying so hard. But I think I'll soon be standing in front of my medicine cabinet, taking out an Oxazepam. The anxiety is bad. Suicide is always a last resort in my head. Not good.

I'm still alive, hello again

Hello! Remember me? I'm still alive. I just haven't been able to connect with myself, with my creative side. I couldn't type anything concerning my feelings or thoughts, I have been disconnected. I'm not too sure if I'm actually back, back in my head, back in my body. I have been an empty shell. It has just been weird. I didn't want to force myself to write something, I would have just gotten desperate and sad. But tonight I felt like I should give it a try. It's almost one a.m. and I probably should be going to bed. Soonish.

So much has happened. And at the same time I'm still in the same state of mind as I was in my last post. It has been going up and down. Right at this moment I'm just sad and I feel totally worthless. I have been thinking a lot about suicide during the last few days. And it really doesn't help that my husband seems to have fallen into a depression too. He is complaining a lot, whining a lot and he is often desperate, sad. He is discussing things that could happen, like his sister dying, or him dying, or me dying. And he doesn't hold it in like I often do. He is really talkactivre about it. I'm trying to listen and to just validate his feelings. I think we are dragging each other down these days. We had a good moment today though. We took a nap (yes, nap, no interpretation needed there) together this afternoon, hugging tightly. It was warm and cozy. Maybe that helped him a bit. 

I have gotten into therapy and I meet my therapist once or twice a week. He is alright. He is maybe a few years older than me and he seems to be a typical Swede. I totally confused him with my style and he asked me things like if I was a satanist, if I worship death, if I use my looks as an armour against others. I think he now gets what goth is and that I dress the way I do because I find it aesthetically appealing. I like that we are discussing things. That we are reflecting. He is both a CBT and a psychodynamic therapist. But we are doing psychodynamic therapy, just sometimes he is offering a CBT point of view. I think I will be able to understand myself better one day. I think this kind of therapy is right for me because it is about intellectualizing issues instead of actually trying to change them by action. I need to understand to be able to act.

I'm still trying to get off the Propavan. It is hell! But this time I'm determined. I'm down to half a pill now. For a few weeks I had had the worst restless legs. I was crying a lot about it. I talked to both my new psychiatrist (she is alright, just a bit condescending at times) and my GP about it. None of them wanted to give me some meds for it because I'm too sensitive to meds. Great. I don't think they even understood that it is a withdrawal-symptom. Idiots. During the last two days mys spasms have come back. This morning I have been  almost paralyzed in bed for two hours, my muscles were so stiff and I had small spasms all over my body. But it has gone away by itself before so I hope it will do the same this time. The restless legs are back too. They have started again the other, day after I had exercised. They are not only restless, they also hurt weirdly. Maybe it's some muscle pain from the spasms. Same with my arms. But this time, this time, I will stop taking the Propavan. I'm not giving up again. It can't get much worse. But honestly, I'm feeling really sorry for myself. Self-pity.

I met my GP because of the restless legs. She is a nervous Russian woman with a bad accent. I often don't understand what she is saying. But she seems to really to want get to the root of things. I had to leave blood and urine samples twice. And it turns out that I have major vitamin D defiency and I have hypothyroidism. Now I at least know why I am fat. Boohoo. My mental issues probably don't come from my thyroid-issues but they could have been worsened by it. They have checked my thyroid-levels a lot during the last three years and they were always alright. So I was quite shocked when I got told that my thyroid is messed up. For three weeks I have now taken a synthetic thyroid-hormone (levaxin). I don't feel much of a change. My energy-levels are fluctuating. I can go from hyperactive to dead tired within an hour, and then back to hyperactive again. I'm on the lowest dosage at the moment. I'll get a ultrasound of my thyroid done this week. I should have gotten it done last week but the office was closed when I got there. I'm also taking vitamin D supplements. I wish I hadn't PTSD and social anxiety. My mood swings could be the thyroid though. We'll see. So basically, my mind and my body are ill and messed up.

My university-studies are going alright. I'm trying. I have had two exams the last two weeks. I really hope that I'll pass. I'm trying so hard. Unfortunately I have not been able to stick to any routines. My sleep is messed up so I just can't get up early. But I'm studying a few hours every day. I'm so thankful that there is something like distance learning. 

Most of my student benefits have gone to our flat. We have renovated the kitchen, painted the walls and all that. We have bought new lamps for the all rooms, we have hung up 10 posters, we have bought small decorative items. So now our flat is all goth and cozy. I really like what we have done. There are still a few more things we need to get done but I'm totally broke now. And there is some part of our car that needs to be repaired (don't ask me what ...) and that will cost us 3000 SEK. I'm used to being broke so I really don't care too much. 

Today I met my friend T. She came over. She is also suffering from mental illness so we don't need to pretend in front of each other. She seemed a bit medicated. She is taking three antipsychotics these days, eight meds altogether. Poor girl. It was really good to meet her. She only stayed for two hours though. I think her social anxiety got too strong. This was the first time I have actually met a friend since February. And I'm really exhausted. Being social is exhausting. I just wish I had more strength. I miss many of my friends. At the same time I really don't want to meet anyone. 

So my life is still somewhat pathetic. I'm really pathetic. But I am trying. Really trying. 

Barely alive but trying hard

I have been staring at a blank page all day, trying to come up with something I can write about. I have somehow lost the motivation and inspiration to write. I even scribbled down some topics I could discuss on a piece of paper. I have just been incapable of writing something that makes sense. So now I'm giving this another go. And as you can see, I'm writing. That's progress!

I'm going through a very bad period right now. This is definitely the worst I have felt for many many months. First off, I feel alone and lonely. I don't often feel that way because I think that having a rich social life is really something that society tells us is normal. But that's not true, we all have different personalities and preferences. But you know, I have been telling myself that I'm alright on my own, only with my man and my cats. But M said something the other day that made me cry later. He said that whenever I have been out, met people, talked to people, I lighten up, I get happy. And I know that it's true. I love talking with others, discussing things, learning things from others. I love putting make-up  and decent clothes on and go out. I love it. But my social anxiety has gotten so strong that I kind of lost that part of me. And I don't feel like I can be bothered to get that part back. There is too much pain involved, too much anxiety. The thing that bothers me the most right now is that I haven't met a single friend for a proper date since March! I know, that sounds crazy but that's the truth! I have had lots of mates and a few closer friends but they have all given up on me. I don't even get messages on Facebook anymore. The only people I text with are my social worker and my boyfriend/husband/man/the guy I live with. The same with phone-calls. It's my own fault, people just gave up on me. I always declined meeting them, going to parties, going to clubs, going to exhibitions. But now I want out of this exile I have created and there is no way out! So I feel incredibly lonely and alone. I feel like I am not connected to other humans anymore. I don't exist.

Depression has hit me hard. I can see all the signs and I know I'm in a deep depression right now. My psychiatrist agrees with that. Last week I have been crying my eyes out every day. My body was still twitching from the Seroquel-withdrawal, I had restless legs and I was so sad, sad, sad and anxious. All I had on my mind was how I was going to kill myself. Has it gotten any better?!? I don't know. I feel detached from reality most of the time. I try to avoid spending the days in bed but it's difficult. I don't eat. I have no creativity in me, no inspiration, no motivation. The moment I wake up I wish it was evening again so I could go back to sleep. And there are moments when I have the strong urge to die, to just jump off the balcony. To walk to the subway-rails and lay down and wait for the train to come. But then I remember that I have responsibilities, that I can't just leave. So yeah, proper depression. I'm just trying to make the best out of it, small steps every day. Cooking. Reading. Writing. Taking a shower. And still, I'm crying. I don't want to. I don't have the strength. Why can't the ground under me just open up and swallow me?!?

I met my psychiatrist in the beginning of this week. We discussed the twitching/spasms/weak legs/stiff muscles. He checked my arms and hands and said that they were fine. He said it will eventually go away. I believe him. I have to believe him. It has actually gotten a lot better during the last two days. The only thing that is still utterly annoying me are my legs. Sometimes I just want to chop them off. I'm also trying to get off the Propavan again. I think the Propavan has a lot to do with my dopamine-levels being messed up. So he gave me some instructions and I'm following them now. I'll take a 3/4 pill for a month, then down to 1/2, then down to 1/4 and then stop taking it. And I'll take Zoplicone every night. It still works for me, after all those years, because I've not been taking it regularly. But now that I do, I'm worried it will stop working eventually. We'll see. I'm also supposed to take a Valium in the morning and one in the evening due to my increased anxiety, depression, suicidality and restless legs. But you know me, I'd rather not do that. So far I haven't taken a single pill. But I might need to do that. I'm not too sure if Valium works for me, the half pill I took some weeks ago didn't do shit. The whole pill I took gave me difficulties to breathe. I know that I'm stupid not following my doctor's advice. I don't know, maybe it's still the punishing myself thingy. I once got told that I'm using "not taking sedatives" as a way to self-harm. That might be true! Maybe I should just go back to the Oxazepam. I told my psychiatrist that I never want to try new psych-meds again. He said that all I have left is my own strength and therapy. And hospital every now and then. He actually said that, someone with my gravity of mental illness won't be able to stay away from hospital forever. I so didn't want to hear that. It was our last appointment before he quits. I'm supposed to call him next week, maybe I'll get some dopamine-pills. We hugged and wished each other good luck with our future endavours. 

I'm trying to stay positive. I cancelled on my social worker this week so I can just focus on finding some kind of strength. Next week my university-studies will start. I have already registered, I have looked at the lists for literature I need. I have read some introduction-texts. I know what will come, I have seen deadlines, topics and exams that I need to pass. I hope I can handle two courses at the same time. This weekend I'll spend on looking for books I need on the internet. I have checked my bank-account and I'll get my student-benefits next Monday. For the first time in 9 months I'll actually have money on my account. But that money is already spent in my head: new ID-card and passport, books, petrol, the paint for our kitchen. It doesn't matter. I can actually spend money! Next Tuesday I'll also have the first meeting concerning the psycho-dynamic therapy. They'll evaluate me. I'm really nervous about it. I hate having to make a good first impression. I'll probably just sit there, shake because of anxiety, move my restless legs and hope that I don't get a freak out and run off. I need this therapy. So things are going to happen next week. On Monday evening I'll have my first chat for the philosophy course. On Tuesday morning I'll meet the psychologist. On Wednesday the Russian course starts. I need to focus on those things. Change. I'll have totally new routines. This autumn things might finally get moving for me again. Take a pill or two. And breathe! (And chop off your legs!)

RESTLESS

My legs have been driving me crazy during the last few days. And the restlessness is also creating more anxiety because I'm getting nothing done at all. And I've been googling my issues so much just to find reassurance that it will go away soon. That everything will go back to my normal state of depression and anxiety. But all I have found are terrible stories about how it has even gotten worse for people! I have read on some more reliable websites that the "extrapyramidical" withdrawal-symptoms most likely stay in the body for up to four months. For some people they will never disappear. I have only taken the stupid Seroquel for a little more than three weeks, how can I suffer from this? I mean, the damn restlessness in my legs came about a week after I have stopped taking it. I also have a very tensed jaw all the time. And I'm too scared to only take the Propavan during the night because the one time I tried I had muscle-spams in my whole body which was really awful. So now I'm taking Zoplicone every night. Not good. I have read about people who have had muscle-spams and akathasia even years after having stopped with the Seroquel. They are bound to bed and their lives have been destroyed. And of course I'm now worried that that will happen to me too. But it hasn't gotten worse for me yet. This morning, for about two hours, I didn't have any restless legs at all. It has just started again.

So what to do? Should I wait it out? I have been trying to avoid sedatives because I just don't want to take them regularly. I'm just not someone who goes and takes a pill right away. My husband thinks that I should call my psychiatrist. But I feel like I have annoyed him enough already, called him twice two weeks ago. And I have an appointment with him in six days anyway. So what I have done is to write down a list of things I need help with. If the restlessness doesn't go away, I need some medication for that, at least for a short period of time. He will probably be really confused that I'm having these withdrawal-symptoms but I had told him from the beginning that I don't work with meds. And I need to get off the Propavan. I guess I'll get to hear that I need to take benzodiazipines for a while, regularly. I guess I'll have to live with that. 

I'm not angry with my psychiatrist. He was really convinced that the Seroquel would help me. He maybe should have listened more to my arguments, that I always get side-effects, that I have always gotten worse from meds, instead of better. But on the other hand, I was the one putting the pill in my mouth, swallowing it. Although I knew better. So I'm really really angry with myself. I knew better! So I guess that's one of the reasons why I don't take any sedatives right now, because I unconsciously think that I deserve to feel like this. I like punishing myself. I should have listened to reason and not hoped for getting better. I knew that something like this would happen! So I'm really angry at myself. I'm so damn stupid!

My anxiety is really bad because of the restlessness. I can't sit still. I mean, I do sit still but there is always this urge to move around. I change positions all the time. I tried to exercise the other day because I thought it would make it better but my legs are so damn weak! It just didn't work out. In two weeks I'm supposed to start up my university-studies again. How will I manage that when I'm like this?

I have become suicidal again. We watched "Iron Man 3" the other day and there was a scene when Tony Stark is standing on a cliff. And all I could think about is how nice it would be to be at that cliff and just jump. And this feeling of wanting relief hasn't gotten any better. I think I'm really depressed. I am indifferent and very sad at the same time. I just don't have any mojo. I would right at this moment love to be standing on those cliffs and prepare to jump. Fortunately all our windows have locks so I can't jump from any of the windows. You know, we live on the sixth floor. And at one time I tried to jump out of our bedroom-window but my boyfriend saw me and wrestled me down. So since then we can't open any of the windows wholly, just a few inches. And I suppose that's good when I have feelings like I'm having right now.

My wedding day. Anxiety-hell

I got married two days ago. But I've been doing so badly with the damn restlessness in my legs that I couldn't be bothered to  write a post about it. Actually, I have gotten so far in my thoughts that I would like to surgically remove my legs. It's just driving me insane. I don't think this will ever go away so hopefully I'll get used to it with time. I could take sedatives because they tend to help but how is that a solution? Right, now I've started this with a lot of complaining again. All I wanted was to write about my "wedding".

So we had booked an appoointment at the town house/citizen center at 4 p.m. on Thursday. We didn't want any huge celebration or an actual party. There were three reasons for that: 1. we didn't have the money to actually host a party with a venue, music and food  2. I just didn't want my dad to be there because that would have meant that I had to dress and behave the way he wants to, and I didn't want my mum to be there because she would have overdone it. I mean, she called me the day before we got married and asked if I was going to have any flowers. It would look beautiful on the wedding-pictures. Erm, no. and 3. I have social anxiety and I just wouldn't have been able to get through a whole day where the focus is on me. I can't even meet friends or take the subway, how could I  able to survive my own wedding? So yeah, it was only me and my boyfriend.

I spent two hours to fix myself up. I didn't want to be overdressed. I just wanted to look "proper" and beautiful for my boyfriend. I wasn't overdressed, I looked goth but wasn't looking like I was on my way to the clubs. I was quite satisfied with the way I looked although I would have loved to weight around 20 kg less. I had terrible spasms in my arms and legs and felt really weak. I could barely stand on my legs. I started to worry that I had gotten some serious nerve damage due to the meds. That caused me some extra-anxiety. I was already anxious about the whole procedure. I had expectation-anxiety: I was imagining myself throwing up in front of a lot of people because of anxiety, or just running away because of a panic attack.

So I wasn't happy and excited. I guess that's what most people are on their wedding-day. I just wanted to get it over with and get back home. The spasms were painful, my legs were so weak and I had a lot of anxiety. So we drove to the place, walked in there (I actually had to wear socks in my high-heels because of some weird reason, my feet have shrunken and my shoes were too big all of the sudden. But as I was wearing black stockings, no one could really see it). I was shaking and just wanted to get out of there. I tried so hard to focus on my boyfriend so I wouldn't totally panic. You know, I wanted to marry him. I just wasn't happy about the whole procedure, me having to go out, having to actually be present and all that. I would have preferred to do it over the internet, some clicks and done. It has nothing to do with that I'm not romantic. Actually, while writing this post I discussed the issue with my boyfriend. I would (and he as well) have been much happier, more content, more excited about getting married via the internet. I wish that option would have been avaiable. So I didn't have to deal with all the negative symptoms of my illnesses. I hate anxiety and it kind of has destroyed my wedding day. But I hadn't expected anything else.

Anyway, we walked in there and there was this huge waiting area with wooden benches. And there were at least 50 people sitting, waiting for their appointment with the social services, the health insurance and the police. We were told to sit down somewhere and wait. So that was when the little bit of romantic feeling that I had got killed. Instead panic won! I was sitting there, my legs were involuntarily moving and I had the big urge to just run away. I focused on my boyfriend, held his hand, stared at the floor. I didn't even think about that I was getting married. I was indifferent to the whole thing. I started to dissociate and still damn worried about my legs just giving up on me. I wanted to get home. I hated the children staring at me. I was convinced people were whispering about us. I wanted to get away.

After about 15 minutes we got called in to a room. It looked like a room that was barely used. It was really dark in there. No one had bothered to turn the lights on I guess. Two women and a man followed us in. The man was the wedding officiant, the other two were witnesses to sign the papers. They didn't ask us for our ID-cards, nothing. We gave them all our papers, they got stamped, things were printed out. Then he asked us if we wanted to have the long or the short version. We both replied silmuntanously "short". You know, my boyfriend has anxiety iusses too and he was white as a ghost. I was worried he would faint or just throw up. Anyway, he asked us if we wanted to marry each other. We said yes. He said that we could exchange rings now. We didn't have any rings. He signed the papers. We didn't have to sign anything. We shook hands. We asked him to take a picture of us (my mum would have KILLED me if there hadn't been a picture). And that was that.

Then we went to sit in the car and smoke a cigarette. We kissed and both said that we were glad that it was over. We didn't want the "getting married" thing, we just wanted "to be married". So now we are married. We went home and had some cake. We got tons of phone-calls, sms, cards and Facebook-messages that day. Honestly, we counted, over 250 people contacted us. I have a lot of friends because I have lived in two countries and my family is huge. So yeah. Anyway, think if all those people would have come to our wedding. It would have been terrible for me. We later just sat on the bed and watched two movies. We ate junk food. We cuddled the cats. That's what makes me happy. Being together with my little family. Not a huge fake-romantic party!

So I'm married now. It doesn't feel any different to just being together. I have handed in papers to change my last name to my husband's (how weird it is to write "husband") and they said it will only take a few days for it to be approved. So I'll get rid off the name that connects me to my father. It will be the best feeling in the world, to see my  new name on an envelope. It's like finally getting my dad out of my life. He actually called me on my wedding-day. We maybe talked for a minute and he congratulated me. I was surprised about that. In some way I was happy that he at least had the decency to call. My mum had texted me all day long and we talked on the phone a few times. My brother wrote to me on Facebook and my sister and I skyped for an hour the next day. So my family didn't forget about me, despite all the shit that is going on right now with the divorce of my parents. 

I'm happy to be married. I think. I'm actually still a bit indifferent which has a lot to do with the weird spasms, the restlessness, the anxiety. I haven't had a moment where I could actually feel what it's going on inside of me. So yeah, my illness has destroyed my wedding-day for me. I couldn't focus on being happy. But it doesn't matter. I have done it, it's behind me and our relationship is in a new phase now. Sadly enough we didn't have any wedding-sex. We never have sex anyway. So yeah.

I'm electrified - withdrawal and side-efffects hell

I'm exhausted. My whole body is in some kind of tensed mode. All my nerves and muscles are tensed, it's not painful, it's more like being constantly electricuted. Last night I decided to not take Zoplicone and just take a Propavan for sleeping. I just don't want to take too much Zoplicone due to the danger of getting addicted to it. And I have done like this for years, take a Zoplicone twice a week or so when I really needed to fall asleep because I had something important planned the next day. What I didn't think of was that I'm probably still in some kind of withdrawal-state because of the Seroquel.

I had no trouble falling asleep around 2 a.m. after having read for about an hour and having cuddled with my cats. But once I had fallen asleep the terror began. First off, I had terrible nightmares. Those I often get when taking Propavan and no Zoplicone. I dreamt about wanting to take a plane to Senegal of all places. I have never even given that country a second thought in my life. But I couldn't find the gateway, ended up in a toilet and witnessed a women getting raped and tortured. Really weird fucked up nightmare. I woke up many times during the night because of spasms and cramps. So terrible! I got those when I tried to stop taking Propavan and even sometimes randomly while being on the Propavan. It's like my body is in stupor and there are weird electric shocks going through it. And my legs and arms, even the rest of my body somehow, start moving, cramping, like a dying fish on land. And this morning it took me about an hour to get out of bed because the feeling was still left in my whole body. I guess the withdrawal from the Seroquel and the Propavan side-effects work together here. Some devilish coalition. My jaw is really tensed too. The feeling hasn't really disappeared out of my body yet. So I have taken a sedative about ten minutes ago (Oxazepam) because I know sedatives are muscle-relaxing. And I have anxiety anyway because of this terrible feeling. My whole body aches! GAH! So tonight and probably the following few nights I'll take a Zoplicone. That has helped before against the weird spasms and cramps I get from the Propavan. I have an appointment with my psychiatrist on the 26th and I'll definitely take that up with him. I need to stop taking the Propavan and I need help with that. I have read up on it (I really shouldn't google things but I was so freaked out by this) and there are many people who are getting spasms of Propavan. Plus for a few months now I sometimes have this weird movement of my mouth/lips that I can't control. That can come from the Propavan too. So once I'm through with the Seroquel withdrawal, I need to get off the Propavan. And as it didn't work out last time with reducing the dosage, I need some help. Maybe some meds or something that will get me through it. Honestly, these spasms freak me out. I hope they are gone tomorrow and the Zoplicone tonight helps. I'm getting married in two days and I really don't want to stand there, having spasms and cramps and no control over my body. It just feels right now as if something is seriously wrong.

On a positive note: the rash and the itching are gone. That's such a relief! This shows that I have actually had an allergic reaction to the Seroquel. I'm glad that I have stopped taking it. Who knows, maybe I had gotten an allergic shock eventually. I'm so over psych-meds. 

I received a letter today, telling me that I have an appointment with a therapist on September 3rd. This is making me really happy! Finally things are happening. I'll try so hard to convince that guy that psychodynamic therapy is right for me. It would be really great if I'd be accepted. I'll have an autumn where things are finally moving forward, no standing still anymore. Studies and therapy. Routines and stability. 

I'm not doing so bad mentally right now. I'm not depressed or sad. I'm a bit anxious because of the weird things happening with my body. But I'm not overworried. I tend to be really hypochondriac but even though all the symptoms are terrible I can keep calm. I think because the rash and the itching have disappeared, I'm convinced that the spasms and cramps are temporary as well. Let's hope so. Right now I'm a bit freaked out because I can't really feel my hands. Gosh, I hope the Oxazepam will make me a bit tired so I can take a nap. That's what I need. A nap.

One day it will all be over

The itching is a bit better today. It's still itching but it is definitely not as bad as yesterday. The palms of my hands are still swollen and somehow burning. But my face looks so much better. But it is still itching, especially on my arms and my back. I did something that I have actually been avoiding due to my hypochondriac tendencies. I googled withdrawal symptoms of Seroquel. I can't believe that people still get this medication! Poeple lost their eye-sight, got strokes, got heart-attacks and most people get the itching and burning that I'm experiencing right now. I'm really relieved that I actually stopped taking the med after just three weeks on it. Otherwise I probably would have had to take it for the rest of my life because getting off it would have been impossible with my ubersensitivity to medications. So yeah, I'm still itching but it feels like it's getting better. I feel a tad weak and this morning I was really close to throwing up. Most people experienced the itching for two or three weeks so at least I know now that there is an end to it. 

Getting off yet another med because of bad side-effects has led me to the conclusion that this is it. I don't want to try any new medications/antidepressants/moodstabilizers/antipsychotics. People always say that I have to endure side-effects and have to try out all the meds avaiable before giving up. Well, if I had a bacteria infection and I knew that there is an end to it, I might have to take the antibiotics for a few weeks, maybe months, yeah, I would try out everything avaiable. But when it comes to psych-meds I'm not thinking like that. It's because I'd have to take them for years and years to come. Why? Because I have several diagnosis, it's not just one infection. Anyway, I don't want to try out any more meds. I guess I slightly hope that they will get somewhere with neurological research and somewhat come up with a simple solution to mental illness. Like lobotomy but less invasive and more studied. On the news they said yesterday that they have found out that the genes of people with mental illness are the same,that there is a genetic disposition. And they came to the conclusion that mental health is mostly genetic and not enviromental. That's a huge find. But of course no one cares because they'd rather think that we have done something wrong than that there is something wrong with the genes, something we have no control over.

So I have given up on meds. I have given up on the hospital as well. But not totally. I can't rule out that I'll be admitted again. That will be periods when I need to be safe. But I want to avoid that as much as possible. One of my biggest fears is getting sectioned, to be admitted against my will. But I doubt that will happen. I'm a reasonable person, even when I'm anxious or really low. So I know what to say and how to act to not get sectioned. Then there's therapy. My psychiatrist told me that he doesn't think that therapy will help me. He said that therapy will only make me understand but it will never heal me. Yeah. I have tried out CBT and DBT. I don't like being told what to do without any proper explaination. The causal correlation between the past and the present, between my actions and my memories has never come up. I can't do that. I need to reflect, to discuss, to learn. So CBT and DBT (which was the totally wrong therapy for me!) didn't work out. I hope that psychodynamic therapy might at least help me to understand. If I understand and accept I might be able to change things, I might be able to gather more strength. I want my recovery to be on my terms and psychodynamic therapy seems to be right for that. But who knows, maybe I won't get in. I still haven't heard from them. It's been six months since my last therapy session. 

So, without meds, will I ever get better? And without therapy? I feel like I'm stuck right now. Nothing has moved forward for a year. In and out of hospital last year, several times. This year has so far only been about standing still. There has been no improvement (how - withou therapy?). I'm starting to give up hope. Honestly, in my head I have already given up. I don't believe that there's any help out there for me. They give me diagnosis after diagnosis, they give me med after med, they put me in and out of hospital. They don't know what to do with me. I'm too complicated, I'm not just a "simple" depression or have BPD or have social anxiety disorder. Nope, I have several things. And they don't know how to help me. I feel like that there is no help for me to get. 

If I were religious, I would let God take care of me. Well, I'm not religious, I don't believe in God, energies or anything spiritual. So where do I turn to? Nowhere. I only have myself. For now I'll take each day as it comes. I'm not in a deep depression right now. I'm depressed, yes, but I'm not awfully suicidal. My anxiety is there but bearable. So I'll just carry on. Day by day,. There are things happening in my life. In three days I'm getting married. In three weeks my university studies start again. I have things to look forward to. And I'm content about these things, but not happy. I'm never happy because even the things that should bring my happiness are always somehow connected to anxiety, worries and so on. Like: I have gained so much weight I'll look stupid in my wedding outfit. Like: I'm afraid I'll fail the courses because I'm doing too bad. So my point is: I'll just carry on, take each days as it comes and not think of the terrible, meaningless future ahead of me. But there will be a day when I won't be able to fight anymore. And that will be the day I'll commit suicide. I knew that day would come, even when I was a small child. I always knew that I'll die of my own hand. And I'm alright with that. It won't happen tomorrow and probably not this year. But maybe in five years, maybe in ten years. The day will come. And I'm alright with that. I have made my peace with the thought that I'll kill myself. Because I know that there isn't any proper help out there for me. No one can help me. And that's okay.

I've told all this to my social worker the other day. I have no clue if that was right or wrong. I explained it to him logically. He didn't say anything. He probably thought that I won't be his problem when the day comes anyway. So he just pretended to listen and hoped that he'd be able to leave my flat soon because all this negativity was making him bored. I know, I know, I can't know what he was thinking. But that's how I felt he was thinking because there was no response coming from him.

I know this post isn't overly positive. But I feel like I have made peace with the thought that there is no proper help out there for me. And I have a plan that makes it feel okay. One day it will all be over. Maybe that day will never come and I'll die of old age, with an uneventful, meaningless life behind me. Who knows.

Itching, burning, scratching - Seroquel you bastard!

I know, I promised some more entries the other day but I was busy with an ITCH that is  all over my body. Sounds weird? Well, let me explain.

My skin had been weird the moment I started taking the Seroquel. But I blamed it on the dry air and the sun. We haven't had much rain this summer and it had been quite hot. And I have quite weird skin due to the PCOS, hormone imbalance. That means that I still get pimpels, I bascially never have clear skin. But thanks to make-up, concealer and powder, most people don't see my ugly face much. Anyway, so my back was a bit itchy and my arms. But then it exploded. I got HUGE bumps on my skin, in my face, my arms and my legs. And the rest of my skin was itching and burning like hell. It wasn't the same kind of itch that I had from the Lamictal but I kind of had the same feelings, feverish, weak and confused. I had just called my psychiatrist a day before about the restless legs I get from Seroquel/Quetiapine and he had told me to take sedatives against that. So I didn't want to call him again because I hate being annoying and bothering other people too much. 

But on Thursday I couldn't take it anymore. The big blops really looked weird and most of my body was itching and the rash had spread. So I called my psychiatrist to ask him if it could have anything to do with the Seroquel. He told me to stop taking it because it could be some kind of allergic reaction. So I haven't taken the med since Thursday. 

I don't have any new rash and the big ones in my face are getting smaller. The ones on my arms have disappeared. But my skin is still acting up. I have small spots/dry spots in my face. And my whole damn body is constantly itching. It is so annoying! Oh, and the restless legs syndrome is gone. I also have a little bit of asthma and itchy eyes. But that could be from my cat, I sometimes get that. But the itching, oh gosh! Sometimes it's almost burning, especially on my palms and the soles of my feet. My face feels hot all the time. Even my scalp is burning. And everything else is itching itching itching. GAH!

I read up on it and many people get the itching as a withdrawal-symptom from the Seroquel. And as I'm ubersensitive to meds I even get withdrawal symptoms after only 3 weeks on the med. Lucky me. I have given it a thought if I might be allergic to something else as well. I mean, because the big spots/bunbs are getting weaker and I haven't gotten any new ones I can be quite sure that they were caused by the Seroquel. But the itching?  I don't think it's our new kitten, we have had him for almost a month, I should have gotten symptoms much earlier. And I haven't eaten anything new that I'm not used to. We are using a fairly new fabric softener but we have been using that one for almost two months. And the symptoms I have are not typical cat-allergy. And if I was allergic to the fabric softener, I'd have a rash where my clothes touch my body. Well, I don't. It's just itching and burning everywhere! Even in my vagina! In my ears. Fortunately not in my mouth. GAH!

So I guess I'll just have to wait and see. I am quite convinced that this itching is a withdrawal symptom, especially because it got really really bad when I stopped taking the med. Before that I had a bit of an itch but the rash and the bumps looked much worse. Another withdrawal-symptom I have is weakness in my legs. I have fallen twice because I suddenly lost all feeling in one of my legs. Yay. I also have a headache which is really persistent.

I've taken 12,5 mg Atarax so I could get rid of the itching. It helped a bit but my face and my palms are still burning. And I'm really tired and I'll most likely have a hangover soon. I have bought Bepathen for the weird dry burning spots in my face and hopefully it will help. I also put some on my palms but they burn just as much as before. Really, I hope this will go away soon. 

I will never take any antidepressant, mood-stabilizer or anti-psychotic medication again. I'm done. They make me suffer, they make me feel even worse mentally and physically than I am without meds. That's it. I'm so angry at myself for letting myself be convinced to try out the Seroquel. The doctor shouldn't have suggested it in the first place. I can't take meds, period. 

After a week of silence

My last entry is from a week ago which is kind of shocking because I have so much to talk about and so many thoughts in my head. So I guess you'll get more than one entry today. You are all so lucky! Haha. My mum has left two days ago and I'm enjoying the freedom of being on my own. My boyfriend is still off from work but around him I can be myself. When someone else is in the same apartment, I always have to put my mask up and pretend that I'm alright. Really, only with my boyfriend I can be myself. I can't believe that he has actually stayed with me through all these years of poverty, depression, suicide attempts, throw backs and drama. This is one of the reasons why I have agreed to marry this man. Because he knows me. He knows how bad I can be doing. He hates my mental illness and he often says that he can't take it anymore. But still, he stays with me. And he has learned to give me my space. He knows that I HATE if people give me attention when I'm not doing well. So yeah, around him I can be myself. And use the bathroom without closing the door, run around in my underwear, without make-up. As nice it was to have my mum here to visit us, it was also really exhausting and I'm glad that things are back to normal now.

Last weekend we spent on the beach here at Alby lake. The lake is just around the corner from where we live, it's a two minutes walk from our building. I'm not so much into summer, beach, sunshine. I actually hate it. It has a lot to do with my body-issues. I have gotten really FAT and I would never show myself to anyone in a bathing suit. And no, I'm not whining, I think I weight between 90 and 95 kg so I'm actually obese. We packed down a blanket and some water and just went down to the beach. The first day we only sat there and enjoyed the view over the lake. We walked through the water with our bare feet and later sat down, smoked a few cigarettes and watched other people. There were two huge parties going on. One was some kind of Nigerian wedding and the other ones was a Sri Lankian party with a band and everything. The next day my mum and my boyfriend packed their bathing clothes and actually swam in the lake a few times. I was listening to music and reading a magazine and randomnly talking to a guy next to me. I love water, it always calms me down. I don't think I have ever had a panic attack close to water. I come from a sea town and I am used to the soothing sound water makes, the wind, the birds. So I actually enjoyed myself. It was a bit too hot for me though and on the way I got a minor panic attack because of that. I have low blood pressure and the hot sun tends to make me dizzy and that caused the panic.

My boyfriend and me at the lake on Saturday (I usually don't post pics of myself but you can only see my fat ass so I'm fine with it)

On Monday it was my boyfriend's birthday. We left in the morning and took the car to Mariefred. That's a small but cute town about 100 km South-West of Stockholm. We wanted to visit Gripsholms Castle which is one of the royal castles. It was so hot that day! USH! First we walked around the castle, looked at runestones they had dug up there and checked out the premisses.

One of the runestones. I love Swedish runestones. They always tell a story. I particulary love this one with the beautiful snake. It's about someone dying in a war.

They are really old, this one was from the 11th century. 

View from the castle-premisses over Mariefred. So beautiful!

It was quite expensive to get into the castle but we really wanted check it out. The castle is known for its huge collection of portraits from the 16th century and onwards. There are over 4000 paintings in the castle. The castle was built in the 16th century and has since then been part of the series of royal castles and has been rebuilt many times. For a while it was a prison.. It was so beautiful! We walked around the different rooms, looked a the paintings, the interior, the painted and decorated ceilings, the wallpaper, the beds, the prison-cells, the tower. I think we were in the castle for over three hours. Unfortunately you weren't allowed to take any pictures inside the castle. But many of the paintings were so wonderful and it was awesome to see the changes through the years, in the clothes of the people portrayed, in the style of the paintings. I really loved the castle. I think my favourite room was the theatre. They had their own theatre! It was so serene and beautiful. 

The inner courtyard with a wishing well in the middle

The castle from the back

Then we went for a walk in the park, looked at statues and the beautiful (but small) garden. It was really hot so we spend some minutes on a bench in the shadows. We then walked over to Mariefred. It wasn't a long walk but in the hot sun it was quite exhausting. Mariefred is such an idyllic and calm place. The center is exactly how someone would imagine a Swedish town would look like. There are only around 3000 people living there but many tourists were in town. Many of the movies based on Astrid Lindgren's children-books were filmed in Mariefred. We checked out all the small cute shops and finally found a place where we could have lunch. I had the most yummy smoked salmon. We sat outside, just looking at people passing by and later had some coffee and cake. We walked to the lake-side and there I found my favourite place in Sweden so far. It was so calm! There were all the small red and yellow houses in the back and there was open water. You could hear the water splash on the stones of the beach. It was so calm! There were barely any people around. I felt so calm and it was such an intense feeling. I really loved that spot. Anyway, later we walked back to the car and because I was so tired and it was so hot, I was quite anxious and really only wanted to get back home. 

The town house of Mariefred

My favourite spot

The last day of my mum's visit we spent mostly at home. We just went grocery shopping. My mum wasn't feeling too well. I think she realized that she had to get back home, to her problems, to the divorce, the money-problems and all that. So we just hung out, watched a movie, cooked lunch and my mum later took a walk to the lake. And then on Wednesday we drove her to the airport. I talked to her today and she is ill. She has a uterus-infection and high fever. She has gotten bacteria from somewhere. I assume it's from the lake. I guess I'm lucky I didn't take a swim in there.

It was all a bit overwhelming for me, to have her around, to be out so much. Yes, I have had some nice moments and but my social anxiety blossomed up many many times. The worst was when we were having lunch in Mariefred and there were these two teenagers who couldn't stop staring at me. Eventually I had to switch seats with my mum, I couldn't take it anymore. But I must say that I'm proud of myself. I managed to go out a few times, I didn't complain and I saw some interesting and beautiful things. Who knows, maybe I'll even have the guts to go down to the lake by myself, with a book and some music. But I doubt that. The week with my mum was quite exhausting and I really need to rest a few days now. Today my boyfriend started a fight with me because he wants to do something "special" on our wedding day. Like eating out or taking a trip. But I don't want that. I want to be calm and happy and not anxious on that day. I want to focus on him and our love and not be overly aware of all the people staring at us because we are overdressed at a cheap restaurant. I think he has understood that now after he talked to his sister on the phone. She has social anxiety too and totally understands what I mean. I need rest, sleep and time on my own (plus with my two cats and my boyfriend) during the next few days. I'll read, write, play stupid Facebook-games and watch movies and series. That's exactly what I need!